Measuring persistent somatic symptom related stigmatisation: Development of the Persistent Somatic Symptom Stigma scale for Healthcare Professionals (PSSS-HCP)

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dc.contributor.authorMcGhie-Fraser,B.
dc.contributor.authorMcLoughlin,C.
dc.contributor.authorLucassen,P.
dc.contributor.authorBallering,A.
dc.contributor.authorvan Dulmen,S.
dc.contributor.authorBrouwers,E.P.M.
dc.contributor.authorStone,J.
dc.contributor.authorOlde Hartman,T. C.
dc.contributor.institutionArbeid & Gezondheid
dc.contributor.institutionTranzo
dc.contributor.sponsorH2020 Marie Skłodowska-Curie Actions, MSCA, 956673
dc.date.accessioned2025-02-01T14:35:57Z
dc.date.available2025-02-01T14:35:57Z
dc.date.issued2024
dc.description.abstractObjective Persistent somatic symptoms (PSS) describe recurrent or continuously occurring symptoms such as fatigue, dizziness, or pain that have persisted for at least several months. These include single symptoms such as chronic pain, combinations of symptoms, or functional disorders such as fibromyalgia or irritable bowel syndrome. While stigmatisation by healthcare professionals is regularly reported, there are limited measurement instruments demonstrating content validity. This study develops a new instrument to measure stigmatisation by healthcare professionals, the Persistent Somatic Symptom Stigma scale for Healthcare Professionals (PSSS-HCP). Methods Development was an iterative process consisting of research team review, item generation and cognitive interviewing. We generated a longlist of 60 items from previous reviews and qualitative research. We conducted 18 cognitive interviews with healthcare professionals in the United Kingdom (UK). We analysed the relevance, comprehensibility and comprehensiveness of items, including the potential for social desirability bias. Results After research team consensus and initial feedback, we retained 40 items for cognitive interviewing. After our first round of interviews (n = 11), we removed 20 items, added three items and amended five items. After our second round of interviews (n = 7), we removed four items and amended three items. No major problems with relevance, comprehensibility, comprehensiveness or social desirability were found in remaining items. Conclusions The provisional version of the PSSS-HCP contains 19 items across three domains (stereotypes, prejudice, discrimination), demonstrating sufficient content validity. Our next step will be to perform a validation study to finalise item selection and explore the structure of the PSSS-HCP.en
dc.description.categoryScientific
dc.description.sponsorshipThis project has received funding from the European Union's Horizon 2020 research and innovation programme under the Marie Sk\u0142odowska-Curie grant agreement No 956673. This article reflects only the view of the authors: the European Agency is not responsible for any use that may be made of the information it contains.
dc.description.statusPeer reviewed
dc.format.filesize1198349
dc.format.numberofpages8
dc.identifier.authororcidMcGhie-Fraser, B.
dc.identifier.authororcidMcLoughlin, C.
dc.identifier.authororcidLucassen, P.
dc.identifier.authororcidBallering, A.
dc.identifier.authororcidvan Dulmen, S.
dc.identifier.authororcidBrouwers, E.P.M.§0000-0002-4053-8054
dc.identifier.authororcidStone, J.
dc.identifier.authororcidOlde Hartman, T. C.
dc.identifier.citationMcGhie-Fraser, B, McLoughlin, C, Lucassen, P, Ballering, A, van Dulmen, S, Brouwers, E P M, Stone, J & Olde Hartman, T C 2024, 'Measuring persistent somatic symptom related stigmatisation : Development of the Persistent Somatic Symptom Stigma scale for Healthcare Professionals (PSSS-HCP)', Journal of Psychosomatic Research, vol. 181, 111689. https://doi.org/10.1016/j.jpsychores.2024.111689
dc.identifier.doi10.1016/j.jpsychores.2024.111689
dc.identifier.issn0022-3999
dc.identifier.pure94155858
dc.identifier.purepermalinkhttps://research.tilburguniversity.edu/en/publications/8094dbd1-f858-4990-b6f0-7a0f307d3d67
dc.identifier.urihttps://hdl.handle.net/20.500.14602/81237
dc.identifier.urlhttps://www.scopus.com/pages/publications/85192168469
dc.language.isoeng
dc.rightsinfo:eu-repo/semantics/openAccess
dc.rights.accessopen
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dc.rights.licensecc_by
dc.rights.licenseurihttps://creativecommons.org/licenses/by/4.0/
dc.rights.rightsholder(c) Universiteit van Tilburg
dc.source.fulltextvisibilityFREE
dc.source.journaltitleJournal of Psychosomatic Research
dc.source.metadatavisibilityFREE
dc.source.publicationstatuspublished
dc.source.versionpublishersversion
dc.source.volume181
dc.source.workflowstateapproved
dc.subjectpersistent somatic symptoms
dc.subjectfunctional disorders
dc.subjectstigma
dc.subjectscale
dc.subjectmeasurement instrument
dc.subjectstereotype
dc.subjectprejudice
dc.subjectdiscrimination
dc.subjecthealhtcare professionals
dc.titleMeasuring persistent somatic symptom related stigmatisation: Development of the Persistent Somatic Symptom Stigma scale for Healthcare Professionals (PSSS-HCP)en
dc.typeArticle
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