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Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic

Westerman-den Boer,Marieke
; 
Voermans,Moniek
; 
Embregts,Petri
Abstract
Background Mothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic. Methods A qualitative study using three case studies. Transcripts were analysed using Interpretative Phenomenological Analysis. Results Two overarching themes with various subthemes emerged. The first theme focuses on the impact of being a mother of a young adult with profound intellectual and multiple disabilities who lives at home during the COVID-19 pandemic. The second theme describes both the vulnerability and resilience of the broader system, as well as its need to experience togetherness. Conclusions Families of a young adult with profound intellectual and multiple disabilities exhibit both resilience and vulnerability during the COVID-19 pandemic, underscoring the importance to support and promote the visibility of these families.
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This research was funded by ZonMw: The Netherlands Organisation for Health Research and Development (grant number: 641001105).
Date
2023
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Tilburg University Research Output Collection
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Keywords
COVID-19, Profound intellectual and multiple disabilities, interpretative phenomenological analysis, mothers
Citation
Westerman-den Boer, M, Voermans, M & Embregts, P 2023, 'Vulnerable but stronger together : An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic', Journal of Intellectual and Developmental Disability, vol. 48, no. 2, pp. 215-223. https://doi.org/10.3109/13668250.2022.2135174
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https://hdl.handle.net/20.500.14602/77920
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