A person-centered approach to study intimacy and sexuality in residential care facility (RCF) clients with dementia: Methodological considerations and a guide to study design
Roelofs,T.S.M. Embregts,P.J.C.M. Luijkx,K.G.
Roelofs,T.S.M.
Embregts,P.J.C.M.
Luijkx,K.G.
Abstract
Background: The person-centered perspective of residential care facility (RCF) residents with dementia with regard to their intimate and sexual lives is largely neglected in research. Objective: We aim to provide methodological considerations and reflections on a performed qualitative study. Recommendations and a guide to study design are provided to inform and encourage future research on the inclusion of people with dementia as participants. Methods: Methodological recommendations and reflections are described in chronological order of the procedure. Fragments of interviews are included for further illustration and clarification. Results: Considering preparation, close involvement of clinical practice, and extensive deliberation regarding study design tended to be important. Considering procedure, investment in contacts with clinical practice and authorized representatives; an introduction meeting; person-centered inclusion and consent; profound skills in interviewing participants with dementia; and flexibility in data collection were proven of importance. Considering data analysis and study quality, including field notes and aiming at a balance between study quality and practicability to enhance study ‘rigor’ were found important. Conclusion: Including the person-centered perspective in research on intimacy and sexuality of RCF residents with dementia, is challenging and takes a flexible a
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2017
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Research Projects
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Roelofs, T S M, Embregts, P J C M & Luijkx, K G 2017, 'A person-centered approach to study intimacy and sexuality in residential care facility (RCF) clients with dementia : Methodological considerations and a guide to study design', Neuropsychological Rehabilitation, vol. 41, no. 2, pp. 359-373. https://doi.org/10.3233/NRE-172205
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info:eu-repo/semantics/closedAccess