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Everyday experiences of people living with mild cognitive impairment or dementia: A scoping review
Huizenga,Jacoba Scheffelaar,Aukelien Fruijtier,Agnetha Wilken,Jean Pierre Bleijenberg,Nienke Van Regenmortel,Tine
Huizenga,Jacoba
Scheffelaar,Aukelien
Fruijtier,Agnetha
Wilken,Jean Pierre
Bleijenberg,Nienke
Van Regenmortel,Tine
Abstract
Increasing attention has been paid to the ‘voice’ of people living with mild cognitive impairment (MCI) or dementia, but there is a lack of clarity about how everyday life is perceived from this insider’s perspective. This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MCI and dementia living at home. A scoping review of qualitative studies, guided by the Joanna Briggs Institute Reviewers Manual, was conducted. Eight databases were searched, resulting in 6345 records, of which 58 papers published between 2011 and 2021 were included. Analysis was carried out by descriptive content analysis. Findings were categorized into seven spheres of everyday life: experiences related to the condition, self, relationships, activities, environment, health and social care and public opinions. The results show many disruptions and losses in everyday life and how people try to accommodate these changes. In all areas of everyday life, people show a deep desire to have reciprocal relationships, stay engaged through participation in activities and have a sense of belonging in the community. However, more research is needed on the factors that promote and impede the sense of reciprocity and belonging.
Description
Funding Information: This research is part of a PhD research and is financially supported by an internal scholarship of HU University of Applied Sciences Utrecht.
Date
2022
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Research Projects
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Keywords
ALZHEIMERS-DISEASE, DAILY-LIFE, EARLY-ONSET DEMENTIA, INTERVENTION RESEARCH, OLDER-ADULTS, PERSON-CENTERED CARE, PHYSICAL-ACTIVITY, SENSE, SOCIAL INCLUSION, YOUNGER PEOPLE, citizenship, dementia, everyday life, lived experience, living in the community, mild cognitive impairment
Citation
Huizenga, J, Scheffelaar, A, Fruijtier, A, Wilken, J P, Bleijenberg, N & Van Regenmortel, T 2022, 'Everyday experiences of people living with mild cognitive impairment or dementia : A scoping review', International Journal of Environmental Research and Public Health, vol. 19, no. 17, 10828. https://doi.org/10.3390/ijerph191710828