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Measuring emotional support in family networks: Adapting the family network method for individuals with a mild intellectual disability

Giesbers,S.A.H.
; 
Tournier,T.
; 
Hendriks,A.H.C.
; 
Hasting,R.P.
; 
Jahoda,A.
; 
Embregts,P.J.C.M.
Abstract
Background: Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method - Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support. Method: The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts. Results: By carefully piloting ways of questioning people with mild intellectual disability, systematic adaptations were made to the original FNM. Data obtained by the FNM-ID can be analysed using social network analysis. Thereby, the FNM-ID provides rich, theoretically significant information on emotional support in the family networks of individuals with mild intellectual disability. Conclusions: The FNM-ID is a useful and successfully adapted tool for other researchers and professionals to systematically explore the family support experiences of individuals with mild intellectual disability.
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2019
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Tilburg University Research Output Collection
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CHILDREN, DEVELOPMENTAL-DISABILITIES, HEALTH, MEMBERS, MENTAL-RETARDATION, MOTHERS, PEOPLE, QUALITY, SOCIAL NETWORKS, STRESS
Citation
Giesbers, S A H, Tournier, T, Hendriks, A H C, Hasting, R P, Jahoda, A & Embregts, P J C M 2019, 'Measuring emotional support in family networks : Adapting the family network method for individuals with a mild intellectual disability', Journal of Applied Research in Intellectual Disabilities, vol. 32, no. 1, pp. 94-105. https://doi.org/10.1111/jar.12512
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https://hdl.handle.net/20.500.14602/69126
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