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Family involvement in person-centered approaches for people with intellectual disabilities and challenging behaviors: A scoping review

Tournier,Tess
; 
Wolkorte,Ria
; 
Hendriks,Alexander H. C.
; 
Jahoda,Andrew
; 
Embregts,Petri J. C. M.
Abstract
Introduction: Families have a significant role in the lives of people with intellectual disabilities and challenging behaviors. However, it is not clear how actively families are involved when people with intellectual disabilities and challenging behaviors are living in out-of-home care. This scoping review explored the frequency and type of family involvement in the application of a person-centered approach in the care for people with intellectual disabilities and challenging behaviors. Methods: Authors conducted electronic searches through six databases: Embase, Medline, Web of Science, PsycINFO, Cochrane Central, and Google Scholar (2005 to 2019) and evaluated relevant publications. Results: Based on the 15 articles identified, only five articles report on family involvement. In addition, frequency of contact, and how family is involved appears to differ between different person-centered approaches. Conclusion: More active family involvement in person-centered approaches for people with intellectual disabilities and challenging behaviors is recommended.
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No potential conflict of interest was reported by the author(s).
Date
2021
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Tilburg University Research Output Collection
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Keywords
ACTIVE SUPPORT, ADULTS, CARE, CHILDREN, CHOICE, LEARNING-DISABILITIES, LIFE, Person-centered approach, SERVICES, STAFF, family involvement, scoping review
Citation
Tournier, T, Wolkorte, R, Hendriks, A H C, Jahoda, A & Embregts, P J C M 2021, 'Family involvement in person-centered approaches for people with intellectual disabilities and challenging behaviors : A scoping review', Journal of Mental Health Research in Intellectual Disabilities, vol. 14, no. 4, pp. 349-374. https://doi.org/10.1080/19315864.2021.1959689
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https://hdl.handle.net/20.500.14602/76022
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