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A goal without a plan Is just a wish: Creating a personalized aftercare plan for breast cancer patients supported by the breast cancer aftercare decision aid
NABOR project group
NABOR project group
Abstract
Aftercare plans can support breast cancer patients' self-management after curative treatment but are often not personalized and limitedly applied by healthcare practitioners (HCPs). This study aimed to develop a tool integrating information provision and assessment of patients' goals and needs, to support the creation and application of a personalized aftercare plan. A multidisciplinary workgroup guided the development by defining the target audience, scope and purpose. Needs of 18 patients and 15 HCPs were assessed to determine the tool's content and format. Usability tests of a prototype among 7 patients and 10 HCPs informed improvements and finalization. The tool, called 'Breast Cancer Aftercare Decision Aid' (BC-ADA), provides information on potential effects of cancer and support options on five domains: physical wellbeing, emotions, relationships, regaining trust and return to daily routine. Patients can indicate which domain(s) they wish to improve, what resources they have and where additional help is needed. Based on their answers, patients can create an aftercare plan together with the HCP, including personal goals, specific actions and agreements on follow-up. Usability and acceptability were positively evaluated by both patients and HCPs. The BC-ADA seems promising in supporting personalized aftercare decision-making and is currently being tested in the NABOR-study in Dutch hospitals.
Description
Representatives of the NABOR Project Group: M.C. van Maaren, University of Twente, Enschede, The Netherlands; V. Retel, Netherlands Cancer Institute-Antoni Van Leeuwenhoek Hospital, Amsterdam, The Netherlands, Erasmus University Rotterdam, Rotterdam, The Netherlands; E van Leeuwen, Dutch Breast Cancer Trialists’ Research Group (BOOG), Utrecht, The Netherlands; J. Burgers, Maastricht Universitair Medisch Centrum, The Netherlands; M.J. Vrancken; Netherlands Cancer Institute—Antoni van Leeuwenhoek Hospital, Amsterdam, The Netherlands; E Siemerink, Z.G.T., Hengelo, The Netherlands; J Veltman, Z.G.T., Hengelo, The Netherlands; R. Mann, University Medical Center Nijmegen, Nijmegen, The Netherlands; J. Wiegersma, Flevoziekenhuis, Almere, The Netherlands; N. van Uden, Santeon Hospital Group, The Netherlands; C. Guerrero Paez, MSc, BVN, Utrecht, The Netherlands; S Claassen, MSc, Allerzorg, The Netherlands.
Date
2025-10-01
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curroncol-32-00552.pdf
Adobe PDF, 1.4 MB
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Keywords
Aftercare, Aftercare plans, Breast cancer, Personalization, Shared decision making, Survivorship, SDG 3 - Good Health and Well-being
Citation
NABOR project group 2025, 'A goal without a plan Is just a wish : Creating a personalized aftercare plan for breast cancer patients supported by the breast cancer aftercare decision aid', Current Oncology, vol. 32, no. 10, 552. https://doi.org/10.3390/curroncol32100552
License
info:eu-repo/semantics/openAccess