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ShareHeart: A patient journey map of patients with ischemia and non-obstructive coronary artery disease based on qualitative research
Van Schalkwijk,Dinah L Widdershoven,Jos W M G Elias-Smale,Suzette Hartzema-Meijer,Marielle Den Oudsten,Brenda L Slatman,Jenny Mommersteeg,Paula M C
Van Schalkwijk,Dinah L
Widdershoven,Jos W M G
Elias-Smale,Suzette
Hartzema-Meijer,Marielle
Den Oudsten,Brenda L
Slatman,Jenny
Mommersteeg,Paula M C
Abstract
Aims and objectives: To visualise the health care experiences and needs of patients with ischemia with non-obstructive coronary arteries in a patient journey map. As such, future design challenges can be provided, and it can be used for future healthcare optimization. Background: Ischemia with non-obstructive coronary arteries is a chronic cardiac condition caused by vascular dysfunctions. Ischemia with non-obstructive coronary arteries is often unrecognised, significantly impairs daily functioning, and is more prevalent among women. Patients' experiences remain unexplored, and a clear patient-centered care pathway is lacking. Design: A qualitative interpretative research design was performed and the standards for reporting qualitative research (SRQR) has been used. Methods: In total, 36 women were included and participated in eight semi-structured focus group interviews. Thematic analysis was used, and identified themes were further classified using 'patient journey mapping.' Additionally, Picker's 'eight principles of patient-centered care' were linked to the results and integrated in the patient journey map. Results: Participants experienced a lack of familiarity with the specific cardiac condition by healthcare providers, repeated hospitalisation, testing and referrals, shortage of specialised cardiologists, and feelings of not being heard. In addition, needs for a multidisciplinary treatment program (including physical and psychological support), better information provision, and an easily accessible contact person were expressed. Conclusions: The resulting patient journey map shows how patients experienced and interacted with the current healthcare system. Overall, the results show a complex and long healthcare pathway and important themes for healthcare experiences and needs were identified. Future research could focus on the development and implementation of a patient-centered evidence-based clinical pathway optimising experiences and quality of life. Relevance to clinical practice: The visual tool can help health care professionals, policy makers, and researchers improve healthcare provision which is patient-centered and tailored to the preferences of patients with ischemia with non-obstructive coronary arteries.
Description
This work was supported by the Dutch Heart Foundation (de Hartstichting) [grant number #2019T102] and ‘We Care’ from Tilburg University and Elisabeth-Tweesteden hospital [grant number WeCare2019]. In addition, this project is part of the IMPRESS consortium.
Date
2023
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Research Projects
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Keywords
health care quality improvement, ischemia with non-obstructive coronary arteries (INOCA), patient centered care, patient journey map, patients experiences, qualitative study, SDG 3 - Good Health and Well-being
Citation
Van Schalkwijk, D L, Widdershoven, J W M G, Elias-Smale, S, Hartzema-Meijer, M, Den Oudsten, B L, Slatman, J & Mommersteeg, P M C 2023, 'ShareHeart : A patient journey map of patients with ischemia and non-obstructive coronary artery disease based on qualitative research', Journal of Clinical Nursing, vol. 32, no. 13-14, pp. 3434-3444. https://doi.org/10.1111/jocn.16409