Survivorship Care Plans to inform the primary care physician: Results from the ROGY care pragmatic cluster randomized controlled trial
Ezendam,N.P.M. Nicolaije,K.A.H. Kruitwagen,R.F. Pijnenborg,J.M. Vos,M.C. Boll,D. van Bommel,M. van de Poll-Franse,L.
Ezendam,N.P.M.
Nicolaije,K.A.H.
Kruitwagen,R.F.
Pijnenborg,J.M.
Vos,M.C.
Boll,D.
van Bommel,M.
van de Poll-Franse,L.
Abstract
Purpose This study assesses the effect of sending a Survivorship Care Plan (SCP) to primary care physicians (PCP) on the communication of the PCP with the medical specialist and the patient and to describe PCPs’ opinions regarding the SCP. Methods In a pragmatic cluster randomized controlled trial conducted in 12 hospitals, the PCP of endometrial and ovarian cancer patients received usual information, while in addition the SCP-care arm received a copy of the patient’s SCP. Results A questionnaire was returned by 266 PCPs (76 %). One third of the PCPs in the SCP-care arm indicated having received an SCP. PCPs in the SCP-care arm were more likely to have had personal contact with the medical specialist (52 vs. 37 %, p = 0.01) but were equally satisfied with the information as PCPs in the usual care arm (7.2 vs. 6.9 on a scale from 1 to 10, p = 0.25). Of all PCPs, 82 % indicated they would want to receive an SCP in the future. A quarter of the PCPs who received an SCP reported that the SCP supported contact with the patient. However, the SCP was found too long. Conclusions Supplying an SCP to PCPs potentially has a positive effect on the communication between the PCP and the medical specialist. The SCP should be concise and focused on PCPs’ needs, such as contact information and tailored information on patient diagnosis, treatment, and possible consequences. Implications for Cancer Survivors In the light of transition of cancer care to PCPs, survivors may benefit from improved information provision and communication. Keywords: Gynecological cancer, Information provision, Health care organization, Communication, Primary care
Description
Date
2014
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Volume Title
Publisher
Research Projects
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Keywords
SDG 3 - Good Health and Well-being
Citation
Ezendam, N P M, Nicolaije, K A H, Kruitwagen, R F, Pijnenborg, J M, Vos, M C, Boll, D, van Bommel, M & van de Poll-Franse, L 2014, 'Survivorship Care Plans to inform the primary care physician : Results from the ROGY care pragmatic cluster randomized controlled trial', Journal of Cancer Survivorship, vol. 8, no. 4, pp. 595-602. https://doi.org/10.1007/s11764-014-0368-0