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Assessing the experience of personācentred coordinated care of people with chronic conditions in the Netherlands: Validation of the Dutch P3CEQ
Rijken,Mieke Close,James Menting,Juliane Lette,Manon Stoop,Annerieke Zonneveld,Nick De Bruin,Simone R. Lloyd,Helen Heijmans,Monique
Rijken,Mieke
Close,James
Menting,Juliane
Lette,Manon
Stoop,Annerieke
Zonneveld,Nick
De Bruin,Simone R.
Lloyd,Helen
Heijmans,Monique
Abstract
Background Countries are adapting their health and social care systems to better meet the needs of growing populations with (multiple) chronic conditions. To guide this process, assessment of the āpatient experienceā is becoming increasingly important. For this purpose, the Person-Centred Coordinated Care Experience Questionnaire (P3CEQ) was developed in the United Kingdom, and translated into several languages. Aim This study aimed to assess the internal and construct validity of the Dutch P3CEQ to capture the experience of person-centred coordinated care of people with chronic conditions in the Netherlands. Participants and Methods Adults with chronic conditions (Nā=ā1098) completed the Dutch P3CEQ, measures of health literacy and patient activation, and reported the use and perceived quality of care services. Data analysis included Principal Component and reliability analysis (internal validity), analysis of variance and Student's T-tests (construct validity). Results The two-component structure found was pretty much the same as in the UK validation study. Sociodemographic correlates also resembled those found in the United Kingdom. Women, persons who were less educated, less health-literate or less activated experienced less person-centred coordinated care. P3CEQ scores correlated positively with general practitioner performance scores and quality ratings of the total care received. Conclusion The Dutch P3CEQ is a valid instrument to assess the experience of person-centred coordinated care among people with chronic conditions in the Netherlands. Awareness of inequity and more attention to communication skills in professional training are needed to ensure that care professionals better recognize the needs of women, lower educated or less health-literate persons, and improve their experiences of care. Patient Contribution The P3CEQ has been developed in collaboration with a range of stakeholders. Eighteen persons with (multiple) chronic conditions participated as patient representatives and codesign experts in (four) codesign workshops. Other patient representatives participated in cognitive testing of the English-language instrument. The usability of the P3CEQ to capture the experience of person-centred coordinated care of older persons has been examined by interviewing 228 older European service users, including 13 living in the Netherlands, as part of the SUSTAIN project. More than a thousand persons with chronic conditions participated in the validation study of the Dutch P3CEQ.
Description
The Netherlands Ministry of Health, Welfare and Sports is funding the National Panel of people with Chronic illness or Disability (NPCD) panel study.
Date
2022
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Publisher
Research Projects
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Keywords
COMORBIDITY, GENDER, HEALTH-CARE, PATIENT, PERCEIVED QUALITY, QUALITY-OF-CARE, care coordination, chronic conditions, patient experience, patient-reported experience measure, person-centred care, validation study, SDG 4 - Quality Education
Citation
Rijken, M, Close, J, Menting, J, Lette, M, Stoop, A, Zonneveld, N, De Bruin, S R, Lloyd, H & Heijmans, M 2022, 'Assessing the experience of personācentred coordinated care of people with chronic conditions in the Netherlands : Validation of the Dutch P3CEQ', Health Expectations, vol. 25, no. 3, pp. 1069-1080. https://doi.org/10.1111/hex.13454