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Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid: Results at one-year follow-up in the PCPCC trial

Cuypers,M.
; 
Lamers,R.E.D.
; 
Kil,P.J.M.
; 
van der Poll-Franse,L.V.
; 
de Vries,M.
Abstract
Objective To investigate the effect of including an online decision aid (DA) during prostate cancer treatment counseling on decisional regret and information satisfaction in a one-year follow-up. Methods Within a cluster RCT, 18 Dutch hospitals were randomized to DA counseling or care-as-usual, patients (nā€‰=ā€‰382) initially completed questionnaires directly after treatment decision making. Six and twelve months later regret (Decisional Regret Scale) and information satisfaction (SCIP-B) were assessed. Anxious and depressive symptoms (HADS) was included as possible covariate. Results After 12 months, 43 participants (15%) regretted their treatment choice and 105 participants (36%) were dissatisfied with the information that was received at the time of decision-making, regardless of being exposed to the DA. Anxious and depressive symptoms at follow-up were associated with regret and information dissatisfaction. Conclusion No long-term benefical effects emerged from DA usage compared to patients who underwent standard counseling.
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Date
2019
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Tilburg University Research Output Collection
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Keywords
Decision aid, IMPACT, OUTCOMES, Patient-reported outcomes, Prostate cancer, Regret, Satisfaction, Shared decision making, Treatment, SDG 3 - Good Health and Well-being
Citation
Cuypers, M, Lamers, R E D, Kil, P J M, van der Poll-Franse, L V & de Vries, M 2019, 'Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid : Results at one-year follow-up in the PCPCC trial', Patient Education and Counseling, vol. 102, no. 3, pp. 424-428. https://doi.org/10.1016/j.pec.2018.10.006
URI
https://hdl.handle.net/20.500.14602/69813
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